Samantha turned two late in August. On her birthday, we celebrated at home. After a bath, Samantha opened her presents. We gave her a toy laptop which she loved and you can see her playing with it in the pictures. It was a quiet birthday celebration but we had bigger plans for later.
We invited many friends to come join us to celebrate Samantha’s second birthday. We rented a “jump house” for the kids and there was always one or two and often many bouncing in there throughout the day. I bought a case of Canadian, partly to enjoy a beer from home but also to introduce people to Canadian beer but not many took advantage of the opportunity. So, I had Canadian beer in the fridge for a couple of weeks after the party.
I baked a cake and Cynthia decorated it. I did some calculations to estimate the carbohydrate count of the cake because Samantha was going to get to enjoy eating some chocolate cake on her birthday. After opening presents earlier, Samantha was very excited to open more and I was hard pressed to keep up with her.
Later in the evening, some families left but others stayed and we had a BBQ and some more dessert before they came to dismantle the jump house. It was getting late and Samantha was very tired. So, soon after that we said our good-byes and Samantha’s second birthday party was over.
Thanks everyone for your gifts and birthday wishes.
Early in the spring, we bought ourselves a patio set. Back in Dunrobin, we would have never considered having a patio set in our back yard. Either it was too hot, too cold or too buggy. There were just too few days where it was comfortable to enjoy our yard. But, here almost every day is beautiful and we have had many of our meals on our back patio. The video here was taken right after our meal and starts with a trick to try and get Samantha to eat some more but mostly shows Samantha playing outside afterwards.
This is a fairly old video clip from late January. We were having some friends over for dinner at our house and we prepared some banana muffins for dessert. After they were out of the oven, Samantha was insisting that she have one early and this is a short clip of her asking for a muffin.
Of course since then we found out about her diabetes so there hasn’t been as much baking lately. But, we things have gotten easier for us to manage lately. Samantha is now on a OmniPod insulin pump. With the pump, we are no longer giving insulin shots manually.
We just attach an stick a new OmniPod onto Samantha every three days and it has a little needle which injects a cannula just into her skin. After that initial pain, we can then administer insulin without giving her shots. Also, the pump can administer much smaller doses of insulin than we can measure which is important because Samantha doesn’t eat that much. Being a toddler, Samantha doesn’t eat just during meals either so this gives us the ability to quickly give her a bit more insulin as she snacks through the day. It really has been a great solution for us and has helped us to bring her blood sugar more under control.
One of the shocking things when Samantha was admitted was that she had lost 3 pounds, going from 19 to 16 pounds in only three weeks. Last week, we had our first doctor’s appointment after leaving the hospital and they weighed her there. She has regained all three pounds and is back to 19 pounds in just slightly more than a week of treating her with insulin. Since then, her appetite is still bigger than ever so she is probably even more now.
So, things are going well. Her blood sugar is still bouncing around but not as much as before and we are getting closer to a regular schedule for insulin shots.
Again, sorry for the lack of update but today was a whirlwind. Cynthia and I had a bunch to do to bring Samantha home. We met with the endocrinologist in the morning and had some lunch with Samantha. Then, I left to pick up Matthew from school and have a shower at home before going back to the hospital. There, we got the prescriptions and I headed out alone to fill them so we had all we needed to care for Samantha at home. I brought back some dinner for us and after dinner, we headed home with Samantha. She was very happy to be in the car and by the time we got home, she went straight to bed. I think she would have rather stayed up a bit but we want her to get back into her routine as soon as possible. Life in the hospital really made it difficult to keep her eating and sleeping schedule.
Cynthia and I did our first blood test on our own at home an hour ago and also administered a bit of insulin as a correction according to our instructions from the endocrinologist. It took some time but it will get easier in the future. Daily, we will contact the endocrinologist to update her on the blood sugar results and the injections we have administered and she will adjust the treatment plan. On Wednesday afternoon, we have a busy day meeting with the endocrinologist team and a diabetes support group.
So, life isn’t exactly back to normal but we are slowly adjusting to the new normal. Thanks everyone for your support this past week. Even though we are far away from our family and friends in Canada, your kind words, concern and offers to help out have meant a lot to us.
Sorry for the delay in updates. Today was a bit of a rough day for me and I was either too busy or napping to do an update. Regardless, Samantha is doing very well. Her sugar is still variable and gets pretty high every once in a while but they are still adjusting the dosages and schedule and that will confine after she is discharged.
Today, Cynthia and I both did our first blood sugar tests and both of us administered insulin. We aren’t that comfortable with it yet but we are getting there. I will try to do more updates tomorrow.
This photo is from yesterday when Samantha was still very tired and was hooked up to her IV’s. But, this afternoon, she has returned to her usual self for the most part. She is eating and awake. We took her for a short walk down the hall to a play room and she had some fun there also. Cynthia and I have spent most of the day talking to a dietician and an endocrinologist assistant (the endocrinologist will be in to see us later).
I left Cynthia with Samantha at the hospital so I could pick up Matthew and get cleaned up a bit at home. Then, Matthew and I will bring dinner with us to the hospital so we can enjoy a family meal and Samantha will be very excited to see Matthew again. I will likely spend the night with Samantha again and Cynthia will go home with Matthew.
So, Samantha is doing much better and we can imagine her at home with us this weekend. We just have to be ready for the responsibility.
Samantha slept pretty well last night even with the semi-frequent interruptions for blood tests. This morning, they removed the IV and Samantha is eating a couple of graham crackers and drinking milk for breakfast. She also got her first shot of insulin in the thigh and she didn’t like that much. She will probably move from the pediatric ICU today also now that she is no longer in DKA.
Cynthia is awake and getting Matthew ready for school. She will join me here after that.
Samantha’s blood sugar is still varying quite a bit. She was down in a normal range but she has gotten back up to the 200’s and higher. But they are focusing on bringing her CO2 levels back to normal which is the priority right now. When she was admitted, she was around 4 or so (not sure what the units are for this blood test) and apparently 18-20 is normal. She is up to 15 so is well on her way to being normal again on that test. They expect normal results by tomorrow morning and then she will be off the IV and eating and drinking and getting insulin shots. She is likely here until Friday and much of that time is dependent on Cynthia and I getting familiar with caring for Samantha’s diabetes.
I am spending the night at the hospital while Cynthia stays home with Matthew. She will get him to school tomorrow and then join me here. I will post again then.
I am at the hospital now, updating the site from my phone. This morning they started giving her some sugar by IV. Her blood sugar had come down to 85 and they were concerned that it would continue to drop. The next tests came back at 110 and now 190. So they are still having some problems getting her blood sugar normalized. But she is improving.
Cynthia and I have a stack of DVD’s to watch about living with diabetes. Matthew is at his friend’s house this afternoon and thanks to Craig and Tami for helping us out. I will keep everyone informed as things evolve.